When a patient with carcinoid syndrome, Ann Edgar and Endocrine Consultant, Professor Park Strachan, got their heads together a very much needed charity was set up in Scotland: The Ann Edgar Charitable Trust.
The Ann Edgar Charitable Trust (TAECT) is Scotland’s only dedicated charity to help and support those affected with neuroendocrine cancer and tumours and carcinoid syndrome. It’s other main aims are to educate and promote awareness.
The South east of Scotland already has a wonderful support network set up. We regularly meet on the 10th of each month. We try to have a variety of meetings to cater for all walks of life and age. Sometimes it’s lunch at Lauriston Farm, or a quiet drink at a bar in Edinburgh. We have all met at a fellow patients house for afternoon tea and enjoyed lovely sandwiches and cakes. June is a craft fair with home baking to which general public can attend, and July we are going to a garden party at Barbara and Alister’s house. Looking forward to the home baking and beautiful gardens as well as seeing the lovely friends I have made. It’s certainly not doom and gloom, the room is always filled with laughter.
Steve and I attend the meetings regularly and look forward to going to them. We have genuinely made some lovely friends. It’s good to be able to say you actually enjoy the company of the others, I have missed some due to being in hospital with this damn infection. I can honestly say there isn’t anyone that wallows in self pity or looks for sympathy. We are a mixed bunch with lots of stories to tell. There is always someone willing to offer some advice without being pretentious.
Yesterday 26 May 2016 a brand new website was launched. And I think it looks pretty cool. All comments are welcome.
You can see the website at http://www.taect.scot
Please have a surf, the site has useful information and I would love to know what you think of it.