Tag Archives: ann edgar charitable trust

Its The 10th of The Month Woo Hoo !!

For most people the 10th of the month won’t mean very much.  But for us folks lucky enough to be involved with The Ann Edgar Charitable Trust  (TAECT) up here in Edinburgh we have chosen to have our Net Natter get togethers on the 10th of the month.   The meetings don’t only take place in Edinburgh, amongst other places folk get together in Aberdeen and Glasgow.

NET Natter Meetings are informal support meetings which offer an opportunity to meet with others in the (reasonably) local area who are affected by Neuroendocrine tumours  and carcinoid syndrome – patients, carers, friends and family.

I’m particularly looking forward to going to this support group today.  Since I haven’t seen most of my chums from the group since I organised the music event to raise money for the charity in November.  Its these guys that understand how I feel at times, take time to listen.  Don’t get me wrong not that other friends and family don’t offer love, support and give great advice at times , but the mutual understanding of fellow ‘netters’  is rather unique.

Since I have been involved with TAECT I’ve had a fairly bumpy ride; in and out of hospital.  The usual scans and blood tests.  Trips to  The Royal Free Hospital in London.  Nasal Gastric tube insertion.  Gastrostomy tube insertion.  Sepsis, with ten week stay in hospital.  During all this, amongst other things, the guys I’ve met at the meetings have messaged and telephoned me to see how I am.  Visited me at home.  Visited me in hospital.  Helped me organise the successful tea party.   And much more…….

Since November our life has been pretty hectic.  My hubby, Steve, who always supports me, is by my side regardless.  Has had 5 operations on his eye to try save the sight.  Steve has had a detached retina.  It has been problematic and not gone the way it should.  Here we are in April five operations later and hoping that he will only need to wait another 8 weeks and then get one more surgery.

Needless to say we have found life fairly difficult. After surgery Steve is restricted in driving, after one week as long as he doesn’t get double vision and he can pass the vision test he can drive.  This helps a great deal, both physically and emotionally.

Tomorrow morning I have Evelyn my nurse coming to the house to change my dressings and service my peg feed. It will be so good to say to her that we have been to the Net Natter meeting.

 

 

 

Netty-in-Kilt

 

You can find out more about The Ann Edgar Charitable Trust here

 

 

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Tea Party For Net Cancer Day

On November 10th 2015 I missed an excellent information day at The Botanic Gardens in Edinburgh.  It was hosted by a small charity, many people will never have heard of – the Ann Edgar Charitable Trust.  This event was for Net Cancer Day.  The reason I wasn’t there; I was in hospital with sepsis.  My mobile phone let out a familiar tone.  I looked down at the screen, the notification said “a big cheer for Elizabeth……” this gave me the boost I needed and echoed what I already knew – that my chums from the support group were all there for me.  It was then I decided by hook or by crook next net cancer day I would be doing something very different.  Eight weeks in hospital, a few months of getting my life back on track.  And then plans began……

The Ann Edgar support meetings offer what I  would say is a pretty special service.  I’ve made new friends and genuinely feel a real benefit.  The charity has not only made me feel welcome but gives time and support to my husband Steve too.  The knock on effect reaches not only partners, but also children, parents, siblings, friends and work colleagues.  My sons, sister and friend have all been in contact with TAECT at some point.  The idea that anyone affected by nets can get support or information on a local level is wonderful.  For me it’s time to put something back in to say thank you.  I would like to raise awareness of TAECT and net cancer too.  What better time than net cancer day.  So one year on and a tea party in Pencaitland is organised to raise some awareness and funds.

Whilst my main aim was to do the majority of the organising, I wanted to involve others.  I enjoyed getting the help; it was great how it all came together.  Helping hands can in all sorts of ways and was much appreciated.

It was a lovely event to organise, folks came from near and far to taste the lovely home baking I have been tweeting about.  It gave me a warm feeling to see so many people walk through the doors.  The room was full of laughter and chatter with many smiling faces.  In the two hours we raised a fantastic £1289

Looking forward to the next fundraiser to get my teeth into.