Nets/carcinoid Syndrome

Back home and boy does it feel good

I’ve been out of the hospital for 10 days.  It’s been a mixed bag of a week.  I’m feeling ever so much better – with worse episodes in between, if that makes sense.  The good periods make the unwell, sickly and painful events bearable.  I can go for that.

My amazing district nurses have been coming in and changing my dressing, cleaning and observing the leakage area.  Applying the appropriate creams; hydrocortisone first on the affected areas and then my saviour – the wonderful cavilon.  No matter how busy the nurses are they always make you feel important to them and they make time for a natter.  I have a vision of them chasing their tails by the end of the day.  Especially with gabby folk like me.

Community dietician was in for a visit this week.  With a student in tow.  This time the student was a mature male.  Keen, thoughtful and already has a good bedside manner.   My usual dietician noticed an improvement in my skin, but was concerned that I looked ‘wabbit’ I came back with I think I may have sofa and daytime TV fever.  We agreed perhaps a wee drive in the car and if I felt up to it, a small outing with Steve and the dogs might be just what I need.  Steve wasn’t too keen on me taking on something too ambitious – I agreed. The Labradors excitedly got into the car wagging their tails frantically.  Buddy panting heavily, Bella looked at him as if to say why are you making all that noise – you would think we never went anywhere.  I turned and looked at him and said don’t get too excited Bud – you never know, you could be going to the vet.  Bloody crazy we are; having conversations with dogs.    We stopped near Garvald and let the dogs out for a run.  They loved it.  Muddy puddles especially.   The cool crisp air was wonderful.  Watching the dogs run with endless energy is a beautiful memory.  The short walk for me was a tiring one, every step sapped me of energy.  However the walk did have its benefits.  My brain was re-energised.  The outing filled me with a feeling of warmth and happiness – I was with my hubby of 29 years and my loyal Labradors.

 

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Third day in my pjs and my faithful labradors

 

Buddy and Bella              Buddy helps with fortisips

 

Thursday afternoon, was feeling very very tired.  To that point that you feel your legs just can’t carry you.  Teatime – dire need to put my pyjamas on.   The whole afternoon I slept on the sofa, with the exception of the times my Labrador, Buddy, would wake me.  He would look at me and if he could speak he would say mother just try something to eat or drink a fortisip.

Buddy is a wonderful golden Labrador.  He follows me around everywhere I go.  Sits patiently in the bathroom, always at my feet or by my side when I’m sitting down.  Accompanies me to kitchen, stands and looks at the fridge – I know he is wondering if perhaps he can have something to eat.  When I’m in

bed, his duvet bed is in our bedroom.  I’m up at night – Buddy is up at night.  He carries clothes through to the washing machine.  Most importantly he knows when my blood sugars are dropping too low.  I can be in a sound sleep, I will suddenly feel a paw on my shoulder; tap tap.  I open my eyes to see his big square head looking over me.    On checking my blood sugar levels after buddy has woken me – they are always around the 2.5 mark.  He has an instinct that i need to drink one of my fortisip Drinks.

As well as Buddy we have Bella, she is also a golden lab, 2 years younger than Buddy.  She doesn’t quite keep as close as Buddy.  However, if I am home alone.  Or on a sofa on my own, I will have a Labrador on either side of me.  Bella is protective of me, keeps her ears open for anything out of the ordinary happening.  Bella is just as faithful, and is learning the household duties and definetly likes to carry things for you.  The softness of the labs mouth, they will carry something for you for a considerable time or distance and will not damage or mark it.  however she is a Daddy’s girl and knows what side her bread is buttered on – she very much looks forward to Steve’s cuddles, playing football, letting them run free outside with him.

Friday, I was violently sick.  While shouting hughie down the loo I had both Labradors in the family bathroom with me.  I was sweating and Bella was gently licking my feet, I know to many that sounds yuk, but for me it was comforting and when your heart is pounding in your ears it’s good to know someone or something is looking out for you.   Buddy takes charge and sits upright by my side as I grip the pan.  If he could hold my hand he would.  At last I’m sure nothing more can come out.  After composing myself to get back to the sofa, we three walk along the long hallway together.  Bella taking the lead and Buddy walking by my side.  Bella only one step ahead, normally she would run along the hallway.  This day she walks slowly at my pace.  Her ears pinned back listening to my every move.  I get to the sofa, fall asleep and wake up an hour or so later:  both dogs faithfully down at my feet.

Saturday felt like a nothing day.  Disappeared so quickly.

Sunday – today.  The first day I feel up to making a cuppa.  Brian and Margaret popped in for a visit.  I’m not very good with visitors when I’m feeling rubbish, but there are some people that you don’t mind calling on you at any time.  My brother Brian and sister in law Margaret are in that class.  They don’t mind if they don’t get a cuppa, or the dogs hairs need vacuumed.  And I don’t mind what I’m like when they come.  They want to visit regardless – which is lovely.  They brought me a beautiful present.  A zebra picture.  I love it.  Buddy loved the cuddles from Margaret too 🙂

I thought I would bath and get some slacks and a t shirt on.  Alas, it’s 4.45pm – I’m washed and in fresh pyjamas.  My labs don’t mind as long as they get a hug. It’s a slow evening snuggled up on the sofa.  And I think after the busy week my hubby has had he is benefiting from chilling on the couch.