Nets/carcinoid Syndrome · Tube Feeding

Help! My gastrostomy tube still has no name

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With all the hospital admissions since my gastrostomy insertion.  I have neglected to do something rather important.  Name my tube.  This is a task I would normally have done almost immediately after getting in in.

So I’m asking for HELP –  I’m looking for ideas for a name for my gastrostomy tube – you know my feeding tube that goes into my stomach.  All name ideas greatly appreciated.  I will collate the names and then make a decision.

 

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My tube is essential to me.  It’s became part of me now.  And the the routine we go through has became the new normal. For me the tube is so very useful, it feeds me my special formulated feed through the pump 10 hours through the night, for 8 hours of that I’m in my bed, I’m pump fed 3/4 hours in the morning and 3/4 hours in the afternoon.  I also bolus feed through a syringe.    My feed provides me all my essential nutrients and vitamins, as well as calories and energy.  Both pump and bolus feeding help with my malabsorption and gaining weight.  If my gastrostomy tube was a human being on the benefit side it would be a generous provider.

There can be a downside.  It appears to have a mind of its own.  It leaks at time.  I get infections, which at times gave caused me horrific pain, hospitalised me and I’ve needed IV antibiotics.  The tube needs to be kept clean.  Disposable parts need changed.  If it were a human being perhaps I would say it was high maintenance.

Please feel free to comment and suggest a name.  I’m so looking forward to NOT calling it tube.  Can’t wait to read your thoughts.

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